Learn more about how we’re creating change.The symptoms of cystic fibrosis are caused by a defective protein, known as the cystic fibrosis transmembrane conductance regulator (CFTR). We are dedicated to improving the daily lives of people with cystic fibrosis.Paying for treatment is a common concern for people with CF. Here's what you can do to manage your daily care.Learn about our focus for the next five years as we advance our path to a cure, meet emerging challenges in care, and explore new ways to partner with and support the CF community.We are driving research to make a difference for people living with cystic fibrosis.Help test new treatments for CF. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.

Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care. We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. In 1955, when the life expectancy of patients with cystic fibrosis was fewer than 10 years, a group of concerned parents joined forces to fight the disease.

The Foundation was established in 1955 by a group of volunteers in Before it began using the current name, the organization was known as the "National Cystic Fibrosis Research Foundation".In 1989, scientists working for the Cystic Fibrosis Foundation discovered the gene that causes cystic fibrosis, considered the key to developing a cure for cystic fibrosis. Managing cystic fibrosis is complex, so consider obtaining treatment at a center staffed by doctors and other staff trained in cystic fibrosis. CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues. CF care team members are paramount in providing highly specialized care to people living with CF. These insights drive the development of new and better treatments and bring us one step closer to a cure.

Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions. The Cystic Fibrosis Foundation (CFF) is currently the largest organization in the U.S. focusing on that goal. Find a clinical trial.We’re making CF a priority on Capitol Hill.

Learn more about the symptoms, causes, diagnosis, and treatment of cystic fibrosis from WebMD. The organization is run by Preston Campbell and has an annual revenue of $284,932,180. Other signs and symptoms may include sinus infections, poor growth, fatty stool, clubbing of the fingers and toes, and infertility in most males. The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. Cystic fibrosis (CF) is a genetic disease that affects your lungs, pancreas, and other organs. Cystic Fibrosis Foundation is rated 4 out of 4 stars by Charity Navigator. Preston Campbell, M.D. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.

People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.


There is no cure for cystic fibrosis, but treatment can ease symptoms and reduce complications. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease and ultimately deliver a cure.

As a clinician, you’re critical in helping people with CF maintain their quality of life. We are committed to providing the tools and resources you need to continuously build upon this work. Researchers are investigating potential therapies to restore proper function to the CFTR protein or correct its production process so that a normal protein is made.The journey to end cystic fibrosis isn't a straight line. The Cystic Fibrosis Foundation (CFF) is a 501(c)(3) non-profit organization in the United States established to provide the means to cure cystic fibrosis (CF) and ensure that those living with CF live long and productive lives. Cystic Fibrosis Foundation receives 98.21 out of 100 for their Charity Navigator rating.

A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center. These secreted fluids are normally thin and slippery. But in people with cystic fibrosis, a defective gene causes the secretions to become sticky and thick.

Planning for these life events requires careful thought as you make decisions that may impact your life.